&EPA EPA 600/R-18-001 United States Environmental Protection Agency Integrating Air Quality into Cardiovascular Care: Exploring Communication Between Patients and Providers An EPA project progress update Release Date: February 2019 ------- Acknowledgements and Contributors: US EPA: Christina Baghdikian, Wayne Cascio, Alison Davis, Stephanie Deflorio-Barker, Ray Garlington, Mary Clare Hano, Bryan Hubbell, Stacey Katz, Elisa Lazzarino, Steve Prince, Gail Robarge, Elizabeth Sams, Susan Stone Industrial Economics, Inc.: Meredith Amend, Henry Roman, Natalie Weiss Subcontractors: Delores Albarracin, Madeline Scammell, Mike Welsh Disclaimer: The views expressed in this report are those of the authors and do not necessarily reflect the views or policies of the U.S. Environmental Protection Agency. ------- Contents Acknowledgements and Contributors: 2 Overview 4 Focus Group Objectives & Design 5 Focus Group Participants 6 Summary of Discussions 7 Patients Focus Group 7 Non-Physician Providers Focus Group 8 Physicians Focus Group 9 Conclusion 10 Limitations 10 Next Steps 10 Appendix A: Handouts During Focus Groups 12 Patients Group 12 Health Care Providers Group 12 3 ------- Overview Adverse cardiovascular effects are associated with exposure to poor air quality in recent studies.1 As cardiac rehabilitation patients have already experienced an initial adverse cardiac event, they are recognized as being at increased risk for future adverse health events associated with exposure to poor air quality. Consequently, cardiac rehabilitation patients represent a special population that would benefit from focused air quality health risk communication efforts and interventions. This document provides a progress update to stakeholders of a U.S. Environmental Protection Agency (EPA) project that explores this topic further. Health organizations are increasingly aware of air pollution as a risk factor for cardiovascular disease and are calling for more information about public health initiatives. As part of broader efforts to protect human health and the environment, the EPA works with partner organizations on air quality and communicating health risks. In 2016, EPA's Office of Research and Development held two workshops: the "Preventing Air Pollution-related Cardiopulmonary Illnesses: Innovative, Cross-disciplinary Solutions" workshop, and the "Wildfire Smoke Health Risk Communication" workshop. The following spring, a call to action was published in the Journal of the American Medical Association emphasizing the need to expand the evidence base of effective strategies to mitigate adverse effects of air pollution on cardiovascular health.2 Additionally, leading organizations like the American Heart Association (AHA), the Million Hearts 2022 initiative [https: //millionhearts.hhs.gov/] co-led by the U.S. Department of Health and Human Services Centers for Disease Control (CDC) and Centers for Medicare and & Medicaid Services, and the European Society of Cardiology have recently included short- and long-term exposure to fine particulate matter less than 2.5 [im (PM2.5) as a risk factor for cardiovascular disease.3 In the summer of 2018, EPA conducted a pilot study that sought to better understand how air quality information could be integrated into cardiac rehabilitation care. A team of researchers from EPA and Industrial Economics Inc. (IEc) conducted three focus groups in Raleigh, North Carolina. Each focus group consisted of a different set of participants involved in a cardiac rehabilitation program. One included cardiac rehabilitation patients, a second with non-physician cardiac rehabilitation health care providers, and the third with cardiologists and primary care providers who spend at least 30% of their time working with patients over the age of 65. This study investigated the experiences, attitudes, and beliefs regarding the risk of poor air quality on cardiovascular health. Further, this study explored the experiences, attitudes, and beliefs regarding the use of portable HEPA air purifiers, a technology that may reduce adverse health effects associated with poor air quality. 1 Reid, C. E., Brauer, M., Johnston, F. H., Jerrett, M., Balmes, J. R., & Elliott, C. T. (2016). Critical review of health impacts of wildfire smoke exposure. Environmental health perspectives, 124(9), 1334; Cascio, W. E. (2018). Wildland fire smoke and human health. Science of the Total Environment, 624, 586-595; Wettstein, Z. S., Hoshiko, S., Fahimi, J., Harrison, R. J., Cascio, W. E., & Rappold, A. G. (2018). Cardiovascular and cerebrovascular emergency department visits associated with wildfire smoke exposure in California in 2015. Journal of the American Heart Association, 7(8), e007492. 2 Brook, Robert D., David E. Newby, and Sanjay Rajagopalan. "The global threat of outdoor ambient air pollution to cardiovascular health: time for intervention." JAMA cardiology2, no. 4 (2017): 353-354. 3 Brook, R. D., Rajagopalan, S., Pope III, C. A., Brook, J. R., Bhatnagar, A., Diez-Roux, A. V.,... & Peters, A. (2010). Particulate matter air pollution and cardiovascular disease: an update to the scientific statement from the American Heart Association. Circulation, 121(21), 2331-2378; Newby, D. E., Mannucci, P. M., Tell, G. S., Baccarelli, A. A., Brook, R. D., Donaldson, K.,... & Hoek, G. (2014). Expert position paper on air pollution and cardiovascular disease. European heart journal, 36(2), 83-93. 4 ------- We heard from these participants that education about healthy lifestyles and avoiding future health risks is central to cardiac patients' experiences after a cardiac event. However, environmental health and air quality risk information is not typically included in educational resources that patients receive. Participants shared a range of opinions regarding incorporating air quality information into the cardiac rehabilitation process. Qualitative analysis of the transcripts from these focus groups is ongoing. Insights from this project can complement current research and programmatic efforts in this area by informing health risk communication among cardiac rehabilitation participants. Focus Group Objectives & Design This study aims to contribute to broader efforts to protect human health by increasing our understanding of risk communication of poor air quality. Effective risk communication is especially important among individuals who have experienced cardiac events because they are at increased risk and may experience disproportionately adverse outcomes as a sensitive population. The specific aims of this study are to understand: 1) how health information is shared among cardiac rehabilitation patients and providers; 2) the extent to which health risks associated with poor air quality are currently addressed with cardiac patients and perspectives on integrating this information into cardiac rehabilitation; and 3) perspectives on the use of portable HEPA air purifiers as a strategy to mitigate adverse health effects related to exposure to poor air quality. The three groups we focused on are individuals who have experienced a cardiovascular illness or event qualifying them for cardiac rehabilitation, and two groups of medical professionals who provide care in this area: non-physicians (nurses, nurse practitioners, physical therapists, occupational therapists, nutritionists, etc.), and physicians (cardiologists and internists/primary care physicians with an adult patient population). We chose these groups because each stakeholder type offers a unique perspective on the goal of increasing awareness about air quality and engagement in health protective behaviors among individuals in this sensitive population. Because of these differences, each group discussion was guided by a set of questions tailored to the perspectives of those stakeholders. The specific questions guiding our study are outlined in Table 1. These questions were used to design scripts that a trained focus group facilitator used to guide the discussions. Across all three groups, we explored awareness, attitudes, and beliefs about the association between air quality and cardiovascular health. Among patients, we also explored the learning process during rehabilitation, as well as patients' experiences, attitudes, and beliefs about portable HEPA air purifiers. The perspectives of patients about their learning after a serious health event may translate into insights about when and how to incorporate air quality information into these processes in the future. We specifically asked about portable HEPA air purifiers because of the growing body of research regarding the efficacy of these devices to mitigate effects of exposure. Understanding the knowledge, attitudes, and beliefs of cardiac patients with respect to these devices is important because these factors relate to adopting the behavior of using the devices.4 With both groups of medical professionals, we explored processes of communication and teaching, and opportunities for incorporating air quality information into cardiac rehab. With the non-physician providers, we explored the process of cardiac rehab, the variety of roles and professionals involved, and specific health 4 Ajzen, I. (1991). The theory of planned behavior. Organizational behavior and human decision processes, 50(2), 179-211. 5 ------- behavior change strategies and techniques they rely on most for encouraging behavior change. In the physicians group, we explored attitudes and beliefs about air quality and cardiac health, and existing or potential opportunities and barriers to integrating this information into their practice. All three focus groups were facilitated by the same discussant and began with a review of the objectives. Each participant received a folder with additional background materials that they could review and take home (see Appendix A). Table 1: Focus Group Research Questions RQ CR Patients Non-Physician Providers Physicians 1 What is the volume, timing, and content of new information a cardiac rehabilitation patient receives after their cardiovascular event and in rehab? What is that learning curve like from a patient's perspective? What roles do non-physician providers fulfill in cardiovascular rehabilitation programs and beyond? What does cardiovascular rehabilitation patient care look like from the physician's perspective - timeline, key players, roles/responsibilities, etc.? 2 To what extent is information on air quality, associated health effects, and strategies to reduce exposure currently part of that learning process? What does the patient communication system look like? Do providers know about the connection between air quality and cardiovascular health? Where do providers look for new information on a topic to be discussed with patients? To what extent is information on air quality and cardiovascular health integrated into current care? What are some factors that may influence that integration? 3 What kinds of questions do individuals have about a HEPA air purifier - its purpose, proper use, impact on their health? What strategies or techniques have been successful at motivating behavior change? What are the existing and potential windows of opportunity to incorporate new information into the communication system? Focus Group Participants Group 1 included nine participants who had experienced a recent cardiac episode and had participated in a cardiac rehabilitation program within the last twelve to eighteen months. All participants were over the age of 65 and were currently non-smokers. Participants were excluded from this focus group if they had a background in environmental science, health care, or related fields. Within these criteria, we recruited a mix of genders and socioeconomic backgrounds. The focus on those greater than 65 years old was largely based on practicality. With the small number of subjects who participate in a focus group, the rationale was to get as many inputs as possible from one age demographic and with the highest susceptibility to the adverse effects of air particle pollution. Then moving forward, we would expand the inclusion criteria to broader groups adversely impacted by air pollution. Groups 2 and 3 also each included nine participants and were composed of health care providers who work with cardiac rehabilitation patients. Group 2 included a mix of non-physician health care providers, including two nutritionists, two physical therapists, three nurses or nurse practitioners, one social worker, and one exercise physiologist Group 3 included six cardiologists and three primary care physicians who spend at 6 ------- least 30% of their time working with patients over the age of 65. All but one participant in Groups 2 and 3 had more than ten years of experience working with cardiac patients. Summary of Discussions Patients Focus Group The primary objectives of the patient focus group were to understand (1) how they received and interpreted information following their cardiac event, (2) what knowledge they might have about air quality-related health risks, and (3) their knowledge, attitudes, and beliefs about air purifiers as a tool to reduce exposure. While cardiovascular patients may have received and sought out a large volume of information in various forms, air quality information was not included. There was generally low awareness of air quality and risks, but patients were receptive to the idea of taking action to reduce exposure to poor air quality. A majority of participants stated that they remembered being overwhelmed by the amount of material and information they received following their cardiac event There was also a wide variety of learning styles represented in the group. For example, some participants read all of the informational materials that were provided to them and did additional research on their own. In contrast, other participants did not read any of the materials and instead preferred verbal communication or hearing personal stories. Most participants stated that key messages were repeated multiple times by a variety of health care providers. With respect to lifestyle changes, most participants stated that they at least tried to make all of the recommended changes. However, the hardest changes involved weight loss and dietary changes. This had to do with the difficulty of implementing the changes, and their impact on participants' social lives. During the discussion, all participants stated that they had not received information from their doctors or other health care providers about the health risks associated with poor air quality for cardiac patients. However, one participanthad read online that air quality and other environmental factors can impact cardiac health. A few had received some information about air quality in reference to their lung conditions. Other participants had been told by their doctor to wear a mask while mowing the lawn or had the general knowledge to stay indoors on bad air quality days. Upon reviewing the EPA handout on cardiovascular health risks from poor air quality, the majority of the participants were receptive to the information. They all agreed that there was nothing confusing or unbelievable about the information. One participant even mentioned that they were particularly interested in the AirNow website where they could get information on daily air quality, while another noted that she found the AHA statement to be a particularly credible source. However, some misconceptions persisted in the group, with one participant stating that you should be able to tell if the air was good or bad by simply stepping outside. In the final section of the focus group, the moderator briefly stepped out so that the participants could view and interact with two air purifiers that were brought in and turned on. Following that brief break, the group discussed their reactions to the air purifiers and how likely they would be to use something like this in their own homes. Most of the participants agreed that, if this device were really to reduce both their exposure risk for future cardiovascular events, they would use it However, they noted several potential barriers. Their primary concern was financial, including the cost of purchasing and operating the device, as well as ongoing maintenance. Other barriers included the noise generated by the machines, and most participants said they would need additional justification before they would consider using one. For example, several participants 7 ------- wanted to be able to assess the air quality in their homes through professional testing before purchasing a device. They also wanted to know how many units might be necessary to make a difference, or if other changes to their house (e.g., window upgrades) would also be necessary for the air purifiers to be effective. None of the participants had any concerns about their ability to operate or maintain the devices. Non-Physician Providers Focus Group The primary objectives of the non-physician health care providers focus group were to understand (1) what roles do non-physician providers fulfill during and after cardiac rehabilitation; (2) what patient-provider communication looks like; (3) what strategies have been successful for motivating behavior change. Cardiac rehabilitation programs are typically structured, fitness-oriented programs that meet three days each week for twelve weeks. Cardiac rehabilitation providers often meet with patients face-to-face, in group settings where they communicate motivational behavioral and fitness messages through interpersonal exchanges. However, there remains a low awareness and understanding of the connection between air quality and cardiovascular health. Although this focus group included a wide variety of specialties, all of them participated in some level of patient education with the goal of enabling patients to maintain their health. All participants agreed that cardiac rehabilitation is a team approach, with several health care providers working together with the same patient. They also tend to have a high number of interactions with the patient since cardiac rehabilitation treatment usually occurs three days per week for each patient While they recommend outside resources to their patients, their own interactions are usually limited to scheduled sessions unless communications from patients have become sporadic. They also noted that patients often form friendships with each other and share information. When it comes to risk communication, most of the participants rely on familiar and popularly understood risks e.g., smoking, hypertension, obesity, and sedentary lifestyle. They provide written educational materials to patients, but also frequently use verbal repetition (both in person and over the phone) because they know some patients will not read the materials. Only one of the participants mentioned using social media, and most agreed that electronic media (email, MyChart, etc.) was not a primary mode of communication with their patients. Almost none of the participants were familiar with the cardiovascular health risks associated with poor air quality. After reading the handout from EPA, they still had questions about how particle pollution triggers an event, as well as whether the risk is acute or chronic. They felt that without that information, they would have trouble communicating this risk to their patients. However, they were all receptive to additional information. The providers also noted that many of the symptoms listed in the EPA handout are regular occurrences for cardiac patients, even on good air quality days. The remainder of the discussion focused on strategies that these health care providers use to motivate behavioral changes. Common strategies included cheerleading, repetition, and talking to patients about how they will maintain adherence after rehabilitation. For example, the physical therapists mentioned that at most appointments they make sure that their patients have a water bottle and periodically drink from it In addition, when a patient is close to completing rehabilitation, the provider helps the patient outline a plan for continuing the exercise program outside the rehabilitation program. There is also an educational component, which entails some participants using a lot of informative signs and posters in their facilities or 8 ------- hosting extra educational classes that patients can attend. The majority of participants agreed that patients are receptive to their suggestions, but also noted that sometimes psychological factors, such as depression, can be an obstacle to behavior change following cardiac episodes. Physicians Focus Group The primary objectives of the physicians focus group were to understand (1) what cardiac rehabilitation looks like from the physician perspective, (2) the extent to which information about air quality and cardiovascular health is integrated into patient care, and (3) opportunities within cardiovascular care to integrate air quality information. While cardiologists and primary care physicians are integral at the early stages immediately following the cardiovascular event, cardiac rehabilitation as a program is something they prescribe to their patients. Like the non-physicians group, information about air quality and cardiovascular health is not currently part of their patient care. The physicians discussed opportunities and barriers to incorporating this information into the limited time they have with patients. Most of the physicians followed a similar pattern of action after a patient has a cardiac episode. This involves discussing what happened with the patient, examining patient lifestyle factors and recommending lifestyle changes, and ensuring that any new medications or courses of treatment do not conflict with their existing health regimen. They also have limited opportunities for patient interaction, as appointments are brief and occur with decreasing frequency after the first few weeks following the event. These participants were supportive of cardiac rehab, and regularly prescribed it to patients as part of their care. Most of the participants stated that they have a large amount of information to communicate to their patients after an event, so they usually try to spread it out over several visits and make use of written materials. Several of the participants were familiar with the respiratory health risks associated with poor air quality. Some participants felt that air quality was "one of those uncontrollables," and did not currently discuss it with their patients because it would be hard for them to recommend concrete changes that would mitigate their patients' risk. With respect to the associations between cardiovascular health and exposure to poor air quality, there was a generally low level of awareness among these physicians. Moreover, there was hesitation to accept information provided in fact sheets during the focus group, as participants perceived the science was not yet clear enough, and they would need additional information before prioritizing this topic. For example, a few participants asked about the cost per quality-adjusted life year for different types of interventions, like air purifiers. However, others noted that while those metrics are important in weighing the cost of interventions with benefits, it is common to recommend newer interventions that have potential benefit without the evidence base. In spite of these reservations, some participants were open to sharing this information with their patients in some fashion. For example, one participant uses electronic signage in his office and stated that he would be willing to include one of EPA's infographics in the rotating set of materials. The participants also discussed how communication occurs between different health care providers during cardiac rehabilitation. Most of the participants supported cardiac rehabilitation and encouraged their patients to do it However, they noted that this is not an option that is available to all patients due to insurance or other limitations such as transportation options or work schedules. Electronic records help physicians monitor patients' progress. They stated that different health care providers usually don't coordinate on the type of messages that they will stress for a given patient, but that everyone usually focuses on the same things. The remainder of the discussion concerned how physicians stayed up to date in their field. 9 ------- Participants mentioned a number of different strategies, including reading scientific journals or news articles, attending meetings or discussions, taking continuing education courses, or having informal discussions with colleagues. Conclusion Limitations This report is a summary of observation notes across team members and does not reflect analysis of the focus group transcripts. Participants were recruited from a limited geographic area and may not represent the broader population. While not generalizable, analysis of these discussions may offer insights about the integration of air quality information into cardiac rehabilitation services and potential opportunities for growth in that area. Next Steps This project is part of a growing body of research about air quality, cardiovascular health, and strategies to mitigate adverse health effects associated with poor air quality. Understanding the knowledge, attitudes, and beliefs among cardiac rehabilitation stakeholders advances public health research and practice in this area. Health risk communication is critical to bringing about behavior change. This study advances our knowledge about those communication processes in the context of cardiac rehabilitation services. Moreover, understanding perspectives on the acceptance and appropriate use of a portable HEPA air purifier builds on current research about effectiveness and health benefits of these devices.5 These focus groups illuminated the low level of understanding and awareness of how air quality impacts cardiovascular health, information describing this process, and how to incorporate exposure reduction messages throughout the cardiac rehabilitation curriculum. Patients were open to receiving this information and using a portable HEPA air purifier, and thus it is important to explore the opportunities for integrating air quality and health risk messaging as well as options for reducing exposure into the rehabilitation process. Given the high frequency and longer duration of interaction, which builds trust, the cardiac rehabilitation providers may be the ideal point of entry to communicate this information to these patients. Providing clear information to physicians is also important in order to support the dissemination through the cardiac rehabilitation providers, however it is unlikely that physicians will communicate about air quality and health directly to the patient, given the limited time and often exhaustive list of other competing topics for discussion. These focus groups fit into a larger initiative to educate cardiovascular rehabilitation healthcare providers and patients on air quality and health. There are opportunities for other organizations to partner with EPA researchers to build on these efforts for larger implementation and evaluation studies. This research can help inform the development of messages and communication strategies (including timing, format, and messenger) that better prepare cardiovascular rehabilitation patients to protect their health during poor air quality episodes. Next steps include a more in-depth analysis of the transcripts to understand more nuanced 5 Fisk, W. J., & Chan, W. R. (2017). Effectiveness and cost of reducing particle-related mortality with particle filtration. Indoor air, 27(5), 909-920; Brugge, D., Reisner, E., Padro-Martinez, L. T., Zamore, W., Owusu, E., & Durant, J. L (2013). In- home air filtration for improving cardiovascular health: Lessons from a CBPR study in public housing. Progress in community health partnerships: research, education, and action, 7(1), 49. 10 ------- patterns that arose within and throughout the focus groups. This understanding will inform recommendations for future research and outreach in this area. 11 ------- Appendix A: Handouts During Focus Groups Patients Group 1. "Effects Of Common Air Pollutants". 2018. www3.Epa.Gov. httpsi//www3. epa.gov/airnow/health- prof/common-air-pollutants-2011-lo.pdf. 2. "Heart Disease, Stroke, And Outdoor Air Pollution". 2018. www3.Epa.Gov. https://www3.epa.gov/airnow/heartflyer.pdf. 3. "California Certified Air Cleaning Devices". 2018. Arb.Ca.Gov. http://www.arb.ca.gov/research/indoor/aircleaners/certified.htm 4. "Hazardous Ozone-Generating "Air Purifiers"". 2018. Arb.Ca.Gov. https://www.arb.ca.gov/research/indoor/ozone.htm. 5. "Air Cleaning Devices For The Home Frequently Asked Questions". 2018. https://www.arb.ca.gov/research/indoor/acdsumm.pdf 6. "Facts About Reducing Your Exposure To Particle Pollution". 2018. Arb.Ca.Gov. https://www.arb.ca.gov/research/indoor/pmfactsheet.pdf. https://www.epa.gov/indoor-air- quality-iaq/indoor-particulate-matter Health Care Providers Group 1. "Particulate Matter Air Pollution and Cardiovascular Disease: An Update To The Scientific Statement From the American Heart Association". 2010. American Heart Association Journal: Circulation, https://www.ahaiournals.org/doi/abs/10.1161/cir.0b013e3181dbecel *Note only the abstract was distributed 2. "Air Pollution Linked To Cardiovascular Disease; Air Purifiers May Lessen Impact | American Heart Association". 2018. Newsroom.HeartOrg. https://newsroom.heart.org/news/air-pollution-linked- to-cardiovascular-disease-air-puriPiers-mav-lessen-impact https://experts.umich.edu/en/publications/the-global-threat-of-outdoor-ambient-air-pollution-to- cardiovascu 3. "What Health Care Providers Should Know About Particle Pollution And Cardiovascular Risk". 2018. Epa.Gov. https://www.epa.gov/sites/production/files/2015- 11 /documents/what health care providers should know fiver .pdf 4. "Particle Pollution And Your Patients' Health Web Course". 2018. Epa.gov. https://www3.epa.gOv/aiimw/fly6r-pra-coi:irse.pdf 5. "Facts About Reducing Your Exposure To Particle Pollution". 2018. Arb.Ca.Gov. https://www.arb.ca.gov/research/indoor/pmfactsheetpdf. https://www.epa.gov/indoor-air- auality-iaa/indoor-particulate-matter 6. "Air Cleaning Devices For The Home Frequently Asked Questions". 2018. https://www.arb.ca.gov/research/indoor/acdsumm.pdf 7. Newby, D. E., P. M. Mannucci, G. S. Tell, A. A. Baccarelli, R. D. Brook, K. Donaldson, F. Forastiere et al. "European Association for Cardiovascular Prevention and Rehabilitation; ESC Heart Failure Association. Expert position paper on air pollution and cardiovascular disease." Eur Heart J 36, no. 2 (2015): 83-93b. https://academic.oup.eom/eurhearti/article/36/2/83/2293343 12 ------- |